Surviving EoE

Thein's journey with a rare disease

A Letter For The Bravest Person I Know

1 Comment

Thein,

You have endured so much pain and discomfort, but still walk around with a smile.   The amount of compassion and empathy you have for others is well beyond your years.  You have a unique gift and I hope you hold it near and dear to your heart.  You amaze me everyday.

Your brothers care and worry about you so much, especially when a surgery is near.  Your older brother informed me, that if anyone messed with your tubie; he was going to karate chop them in the throat.   Although I do not approve of this violence 😁, coming from an eight year old that loves martial arts… It shows how much he adores you.  Even though your younger brother may pull your hair and steal your toys, he is the first to run to your aid when you get hurt.  He will give you hugs so tight that, in some way, help you calm down.

Your father and I are so blessed to have you in our lives.  We know what a long road you have ahead of you in order to fight this awful disease.  So when you are feeling down, know that we will be right beside you as long as you need (and your brothers as wingmen).  You will not fight this alone.

“OOO… Snuggle puppy of mine.

Everything about you is especially fine!

I love what you are.  I love what you do.

 OOOOoooo.  I LOVE YOU!!”   ~Sandra Boynton

Love, Mom

P.S. The picture is post feeding tube surgery.  Your brothers face timed you everyday to say good night.😊

10869502_10100700049911667_1651664752589081423_o

Author: Lesa

We are an energetic, on the go kind of family. With three boys, life can get a little busy... Sports, potty training, EoE, getting dirty, teething and making messes all describes my day perfectly! We wouldn't have it any other way.

One thought on “A Letter For The Bravest Person I Know

  1. What an amazing little man you are Thein, I love you as if you are my own. Liam loves you and asks and prays for you. Your Mommy and Daddy and brothers are amazing as well, you are lucky to be a part of a wonderful family. We love you too!!
    Mandy, Dusty, Liam

    Liked by 1 person

Leave a comment